By Melanie Sonsteng-Person and Jesse Van Leeuwen
This White Paper outlines how a researcher and two mothers of children with medical complexities created a successful virtual photovoice project that became a safe virtual space where “medical mothers” could share their experiences and strategies. The project was born out of a need for medical mothers to navigate the daily challenges they face as primary caregivers and advocates for their children. The White Paper describes their photovoice project process from start to finish, from developing a logo and online identity, to recruitment, engaging with sensitive topics, creating a successful virtual photovoice exhibit, and engaging a virtual audience. The paper concludes with a checklist of lessons learned, to inform decision-making by other virtual photovoice projects and teams. The co-creators’ process of building trust and mutual respect among the core team, with the participating mothers, and with the medical and social services community in San Diego and beyond, is certain to inspire empathetic approaches to photovoice decision-making by future virtual projects that use photovoice to explore sensitive topics.
Download Vol 1, Issue 2 here.
By Carson Peters
During her Summer 2020 internship at Photovoice Worldwide, Carson Peters conducted a literature review on recent innovations in use of the photovoice method with people with disabilities, in particular cognitive and communication disabilities. Carson’s literature review findings and her training in mathematics and epidemiology inspired her to develop an interdisciplinary model she calls the 4Es of empowerment through photovoice. By re-envisioning photovoice frameworks and theories found in the literature (Moffat & Kohler, 2008; Liebenberg, 2018; Bates, Ardrey, Mphwatiwa, Bertel Squire & Niessen, 2018; Roy, Donaldson, Baker & Kerr, 2014; Lorenz & Kolb, 2020; and Golden & Earp, 2012), Carson provides a lens for students to view the photovoice method and its use, and photovoice project findings and outcomes. Carson’s literature review documents innovations in use of the method to support meaningful photovoice participation by people with cognitive and communication disabilities, an underserved yet important public health population. The 4E model is one way to conceptualize the empowerment process of photovoice. The model is intended to foster connections between quantitative and qualitative research methodologies and their student practitioners, and inspire others to envision and conduct participatory visual research that is person-centered and inclusive.
Download Vol 1, Issue 1 here.